{"id":62440,"date":"2025-06-02T17:40:19","date_gmt":"2025-06-02T17:40:19","guid":{"rendered":"https:\/\/pulsperry.com\/?p=62440"},"modified":"2025-06-02T17:40:20","modified_gmt":"2025-06-02T17:40:20","slug":"mom-doesnt-dar","status":"publish","type":"post","link":"https:\/\/pulsperry.com\/?p=62440","title":{"rendered":"Mom doesn\u2019t dar."},"content":{"rendered":"\n
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Stephanie and Dan Dworksy were shocked when they laid eyes on their newborn son, Kacy, for the first time.<\/p>\n\n\n\n

Kacy was born with melanocytic nevus, a skin disease that causes large black spots all over the body.<\/p>\n\n\n\n

\u201cThey were just everywhere. Spots on his face, on his legs, his back is covered,\u201d says mother Stephanie.<\/p>\n\n\n\n

The disease affects 1 in 500 000 people and comes with an increased risk of skin cancer \u2013 but otherwise, the effects are purely cosmetic.<\/p>\n\n\n\n

Stephanie lives with guilt every day because of her son\u2019s spots.<\/p>\n\n\n\n

\u201cYou know, you go through 10 months doing everything that you can dto have a perfect pregnancy and be healthy, and then you think you did something wrong,\u201d she says.<\/p>\n\n\n\n

Stephanie realizes that her son is different and their lives would be affected because of it. But the family is now seeking to raise awareness about their son\u2019s rare disease. Share<\/a><\/a><\/p>\n\n\n\n

Stephanie and Dan Dworksy were shocked when they laid eyes on their newborn baby, Kacy, for the first time.<\/p>\n\n\n\n

Kacy Daniel was born on the 9th of June 2016 with melanocytic nevus, a skin disease that causes large black spots all over the body.  He had a Giant Arm Nevus on his left arm and \u201csatellites\u201d all over his body.<\/p>\n\n\n\n

\u201cThey were just everywhere. Spots on his face, on his legs, his back is covered,\u201d his mother Stephanie told CBS Los Angeles<\/a>.<\/p>\n\n\n\n

 The disease affects 1 in 500 000 people and comes with an increased risk of skin cancer \u2013 not to mention the social issues his parents feared would be faced with, which as a parent is unbearable to even think about. <\/p>\n\n\n\n

Otherwise, the effects of the spots are purely cosmetic.<\/p>\n\n\n\n

But Stephanie explained in 2016 that she lived with guilt every day because of her son\u2019s spots.<\/p>\n\n\n\n

\u201cYou know, you go through 10 months doing everything that you can do have a perfect pregnancy and be healthy, and then you think you did something wrong,\u201d she said.<\/p>\n\n\n\n

Stephanie realized that her baby was different and their lives would be affected because of it. But the family was seeking to raise awareness about their son\u2019s rare disease.<\/p>\n\n\n\n

When Kacy was born, doctors warned that his appearance would likely cause unwanted glances and comments.<\/p>\n\n\n\n

\u201cPeople are going to stare at him, kids may say some mean things (\u2026) you may even find parents that don\u2019t want their kids to be near him, because they don\u2019t know what this is,\u201d father Dan says.<\/p>\n\n\n\n

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The fear of seeing or hearing her son ridiculed or bullied has pushed Stephanie not to go out some days. <\/p>\n\n\n\n

\u201cI try not to go out, and I feel so guilty about it,\u201d says Stephanie.<\/p>\n\n\n\n

There are no easy solutions when you have a child that looks a little different and you have no control over people\u2019s prejudices.<\/p>\n\n\n\n

But the couple is now trying to transform people\u2019s perceptions by creating more awareness about rare skin disorders \u2013 hoping in turn to promise their baby boy a better future. <\/p>\n\n\n\n

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