{"id":62838,"date":"2025-06-05T14:50:12","date_gmt":"2025-06-05T14:50:12","guid":{"rendered":"https:\/\/pulsperry.com\/?p=62838"},"modified":"2025-06-05T14:50:13","modified_gmt":"2025-06-05T14:50:13","slug":"mysterious-facial","status":"publish","type":"post","link":"https:\/\/pulsperry.com\/?p=62838","title":{"rendered":"mysterious facial"},"content":{"rendered":"\n

Their faces look exactly the same, and according to them, they changed over time.<\/p>\n\n\n\n

\"\"
Youtube\/Truly<\/a><\/figcaption><\/figure>\n\n\n\n

Unfortunately, they hadn\u2019t visited a doctor in order to try to detect the cause of their condition until they became famous on TikTok. Even then, no one was able to detect the exact reason which lead to these people\u2019s faces to change drastically.<\/p>\n\n\n\n

Recently, sisters Sri, Mairani, Tiur, and their brother Surya appeared on camera for the YouTube channel Truly<\/em> where they spoke of their condition and how it affects their lives. After considering a number of theories, the siblings settled on the idea that their condition is a result of genetics.<\/p>\n\n\n\n

\u201cI always used to think about it; Why am I so different to my sisters and brother?\u201d Tiur, the only sibling without the condition, told Truly.<\/em><\/p>\n\n\n\n

\u201cBut when I got older, what I realized was that it must be genetics from our parents. My sisters and brother inherited it from my father, and I am more like my mother.<\/p>\n\n\n\n

\u201cWe think that their condition right now isn\u2019t a problem day-to-day. If it did cause problems, like tiredness, they would go to the doctor for a check-up,\u201d Tiur explained. \u201cNow, their condition doesn\u2019t affect their lives, so it\u2019s not an issue.\u201d<\/p>\n\n\n\n

\"\"
Youtube\/Truly<\/figcaption><\/figure>\n\n\n\n

<\/h2>\n\n\n\n

According to some, the members of this family might be suffering from a rare condition called Parry-Romberg Syndrome which according to the National Institute of Neurological Disorders and Stroke is a condition \u201cwhere the tissue of one side of the face gradually wastes away.\u201d This condition is incurable but \u201cimmunosuppressant drugs and other medicines may help treat some neurological symptoms. Other treatment focuses on treating other symptoms.\u201d<\/p>\n\n\n\n

Another possible condition the Manurungs might be suffering from is Treacher Collins, a genetic disorder resulting in congenital craniofacial malformation which affects the development of bones and other tissues of the face. <\/p>\n\n\n\n

A third possibility could be the so-called Barber Say Syndrome, which is usually present from birth and causes malformations in a newborn\u2019s body.<\/p>\n\n\n\n

\"\"
Youtube\/Truly<\/figcaption><\/figure>\n\n\n\n

<\/h2>\n\n\n\n

\u201cWhen we walk around our village, we don\u2019t have any problems. No one makes fun of us, no one insults us in our village,\u201d Surya said.<\/p>\n\n\n\n

\u201cBut if we leave here and go out of town, people who never seen us before for sure, they look surprised when they do. The fact is our faces changed, but we accept it and just live with it. We are thankful for it, it\u2019s a gift from God. That\u2019s how we see it.\u201d<\/p>\n\n\n\n

\"\"
Youtube\/Truly<\/figcaption><\/figure>\n\n\n\n

Tiur added: \u201cI feel bad that they\u2019re not like me. I have a normal life without bullying, without being mocked, without being ridiculed by others. When they feel sad because of that, I do too.\u201d<\/p>\n\n\n\n

The family decided to use their specific looks to gain the attention of people worldwide and spread a message that we should all embrace our physical appearance and learn to love ourselves they way we are.<\/p>\n\n\n\n

\"\"
Youtube\/KeluargaManurung<\/figcaption><\/figure>\n\n\n\n

They decided to start posting videos on TikTok where have over 2.9 million followers. They post videos of themselves dancing and show the world how they live. At the same time, they use the platform as a way of earning money.<\/p>\n\n\n\n

\u201cWe went viral on TikTok,\u201d mother Mardiah Manurung said. \u201cSince then people thought we did it for pity, but that\u2019s not true. We\u2019ve used this as an opportunity of going viral of hoping to earn a living to raise our living standards.\u201d<\/p>\n\n\n\n

Since the documentary about this family aired on Truly <\/em>some 18 months ago, Surya got married to a beautiful woman named Shasa Puspita Dew.<\/p>\n\n\n\n

This family inspires many and they are the perfect proof that appearance is not everything.<\/p>\n\n\n\n

also read…<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

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