Stephanie and Dan Dworksy were shocked when their son, Kacy, was born with melanocytic nevus, a rare skin condition causing large black spots on his body. The disease, affecting 1 in 500,000 people, carries an increased risk of skin cancer but has no other health effects. Stephanie felt guilt over his condition, despite having a healthy pregnancy. The family now seeks to raise awareness about Kacy’s rare condition and the challenges they face, including potential social stigma.
“People are going to stare at him, kids may say some mean things (…) you may even find parents that don’t want their kids to be near him, because they don’t know what this is,” father Dan says.
The fear of seeing or hearing her son ridiculed or bullied has pushed Stephanie not to go out some days.
“I try not to go out, and I feel so guilty about it,” says Stephanie.
There are no easy solutions when you have a child that looks a little different and you have no control over people’s prejudices.
But the couple is now trying to transform people’s perceptions by creating more awareness about rare skin disorders – hoping in turn to promise their little boy a better future.
We hope that spreading awareness about Kacy’s condition will help the public have a better understanding about his diisease and realize that he is a sweet baby just like any other.
Please share Kacy’s story to support the Dworksy’s mission to spread awareness about his disorder and make people realize there is nothing dangerous about it!
